Inside Out with Rachel (& Jake); Hirschprung Disease & Ostomate Duo Artwork

Inside Out by Amber

I'd like to introduce you to Inside Out by Amber. It's where I have the pleasure of uncovering life when something like q chronic illness is thrown into the mix with a variety of guests. As someone with experience of living with chronic, invisible illness and a permanent stoma, as if living some of these things isn't stigmatised enough at times, many topic areas and questions to do with normal daily living are often unspoken of or, difficult to resonate with sometimes making things feel even more confusing, overwhelming and isolating. Not just for those of us going through whatever it may be but, for those around us too. Everybody, should feel empowered, included and represented through the information and sources available to them. So, throughout this podcast, I get to delve into some really interesting topic areas to do with life when something like a stoma, bowel condition or, wider disability / illness are thrown into the mix through having conversations with some pretty fascinating people; from patients, to partners and athletes to healthcare professionals - I can't wait to share them with you! Whether you're a patient, a loved one or simply here to learn and find out more, I'd like to welcome you to this podcast as a little safe space where you're all invited. As the saying goes, there really is no such thing as a stupid question and in fact here, no question, thought or topic is off limits. I hope the podcast brings you a little bit of joy, insight or helps in some way shape or form whether thats by answering an unmet question or by helping you feel less alone. Be sure not to miss an episode and subscribe to the podcast as well as follow on socials to keep up to date and get involved @insideoutbyamber

All Episodes

Inside Out by Amber

Inside Out with Rachel (& Jake); Hirschprung Disease & Ostomate Duo

July 12, 2020 • Season 1 • Episode 7

In this episode, I chat to Rachel (&Jake), a mother and son duo who both live with Hirschprung Disease and stoma bags. Rachel discusses experiences of both living with these things herself, as well as mothering a child (Jake) who also lives with these things.

Find Rachel here; https://www.instagram.com/gutsy.mum/?hl=en

Another big thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/

Links to things discussed in the episode;

Jessica's stoma journey; https://www.facebook.com/jessicasstomajourney/

ERIC (The Children's Bowel and Bladder Charity); https://www.eric.org.uk/?fbclid=IwAR26QsOckw8eBq_1ZYOIZx-IrQtrWC2CCjL1wLjJuz0LZbqkr6FpTxjSX04

Noah's Ark; https://noahsarkcharity.org/?fbclid=IwAR0P2sm5DCPvhLhf08KjKhxL5jzl6arXLed_Gqk5fQKu-agpeGR2dcu8kGQ

For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;

Crohn’s & Colitis UK;